Resumo
This paper presents part of the findings of a doctoral study aiming to understand the construction of informational strategies for living and dealing with Prostate Cancer related information according to self-reported levels of functional health literacy. A qualitative modeling design framed the inquiry through the constructivist perspective. Older men recreate modes of living and attitudes toward information according to their social and cultural capital, as well as the intensity of their contact with an informational network. Self-reported levels of functional health literacy seem to be harmonious with distinct informational profiles/patterns despite differences in general literacy or formal education. This study implies a new understanding of functional health literacy and its role, the dynamics of social/informational networks, as well as the needs of redesigning communication strategies.Referências
Albert SM, Teresi, JA. Reading ability, education, and cognitive status assessment among older adults in Harlem New York City.Am J Public Health 1999; 89: 95-7.
Andrus MR, Roth M T. Health literacy: a review. Pharmacotherapy 2002; 22: 282-02.
Baker LM, Wilson, FL. Consumer health materials recommended for public libraries: too tough to read? Public Libraries 1996; 35: 124-30.
Bardin L. L’analyse de contenu. 8th. ed. Paris : Presses Universitaires de France ; 1997.
Bennenbrock FTC, Buunk BP, van der zee KI, Grot B. Social comparison and patient information: what do cancer patients want? Patient Educ Couns. 2002; 47: 5-12
Centre for Literacy of Québec. A working definition: literacy for the 21st century. [s.e.]: Québec; 2004. Available from: http://www.nald.ca/province/que/litcent/litWD.htm
Clark JA, Wray N, Brody B, Ashton C, Giesler B, Watkins H. Dimensions of quality of life expressed by men treated for metastatic prostate cancer. Soc Sci Med 1997; 45:1299-09.
Clough JD. Functional health illiteracy: what patients don't know can hurt them. Cleve Clin J Med 2002; 69: 355.
Creswell JW Qualitative inquiry and research design: choosing among five traditions. Thousand Oaks, CA: Sage; 1988.
Davis TC, Williams MV, Marin E, Parker RM, Glass J. Health literacy and cancer communication. CA: Cancer J Clin 2002; 52:134-49.
Denzin N K, Lincoln YS. Part I: Methods of collecting and analyzing empirical materials. In Denzin N K, Lincoln YS, eds.Collecting and interpreting qualitative materials. Thousand Oaks, CA: Sage 1998: 35-45.
Diefenbach MA, Dorsey J, Uzzo RG, et al. Decision-making strategies for patients with localized prostate cancer. Sem Urol Oncol 2002; 20: 55-62.
Doak CC, Doak LG, Friedell GH, Meade CD. Improving comprehension for cancer patients with low literacy skills: strategies for clinicians. CA: Cancer J Clin 1998; 48:151-62.
Freire P. Educação como prática da liberdade. 23.ed.). Rio de Janeiro: Paz e Terra; 1999.
Gazmararian JA, Baker DW, Williams MV et al. Health literacy among Medicare enrolees in a managed care organization. J Am Med Assoc 1999; 281: 545-51.
Greene MG, Adelman RD. Physician-older patient communication about cancer. Patient Educ Couns 2003; 50: 55-60.
Jaccoud M, Mayer R. L’observation en situation et la recherche qualitative. In Groupe de recherche interdisciplinaire sur les méthodes qualitatives, ed. La recherche qualitative : Enjeux épistémologiques et méthodologiques. Montréal: Gaëtan Morin ; 1997. 211-49.
Lapadat JC, Lindsay AC. Transcription in research and practice: from standardization of technique to interpretative positioning.Qualitative Inquiry 1999; 5: 64-86.
Le Moigne JL. Sur les fondements épistémologiques de la science des systèmes. In Le constructivisme, Tome I: des fondements. Paris: ESF 1994 : 113-34
Lepore SJ, Helgeson VS. Social constraints, intrusive thoughts, and mental health after prostate cancer. J Soc Clin Psychol1998; 17: 89-106.
Lincoln Y, Guba E. Establishing trustworthiness. In Bryman A, Burgess, RG, eds. Qualitative research. Vol III. Thousands Oaks, CA: Sage 1999: 397-44.
Macario, E., Emmons, K. M., Sorensen, G., Hunt, M. K., & Rudd, R. E. Factors influencing nutrition education for patients with low literacy skills. J Am Diet Assoc 1998; 98: 559-64.
Merriman B, Ades T, Seffrin JR. Health literacy in the information age: communicating cancer information to patients and families. CA: Cancer J Clin 2002; 52: 130-33.
Miles MB, Huberman, AM Qualitative data analysis: an expanded sourcebook. (2nd ed.). Thousand Oaks, CA: Sage 1994.
Morin T. L’apprentissage innovateur: un paradigme émergent en éducation des adultes. Unpublished doctoral dissertation.Université de Montréal, Montréal, Canada. 1993.
Mucchielli A. Dictionnaire des méthodes qualitatives en sciences humaines et sociales. Paris: Armand Colin. 1996.
Muhr T. ATLAS/ti: a prototype for the support of text interpretation. Qualitative Sociology 1991; 14: 349-71.
Muhr T, Scientifc Software Development. Visual qualitative data: analysis, management & model-building- Short user’s manual. Berlin. 1997.
Newman MA. Recognizing a pattern of expanding consciousness in persons with cancer. In: Jeffries N, ed. A developing discipline: selected works of Margaret Newman. New York: Northeastern 1995: 159-71.
Parikh NS, Parker RM, Nurss JR, Baker DW, Williams MM. Shame and health literacy: The unspoken connection. Patient Educ Couns 1996; 27: 33-9.
Pires AP. Échantillonnage et recherche qualitative : Essai théorique et méthodologique. In : Groupe de recherche interdisciplinaire sur les méthodes qualitatives,ed. La recherche qualitative : Enjeux épistémologiques et méthodologiques.Montréal: Gaëtan Morin. 1997: 113-69.
Schwandt TA. Constructivist, interpretivist approaches to human inquiry. In: Denzin NK, Lincoln YS, eds. Handbook of qualitative research. (1st ed.). Thousand Oaks: Sage. 1994: 118-37.
The National Work Group on Literacy & Health Communicating with patients who have limited literacy skills. J Fam Pract 1998; 46: 168-76.
Zanchetta MS. Older men’s self-reported levels of functional health literacy and the process of constructing strategies to live and deal with prostate cancer-related information within their natural environments: A qualitative model. [thesis]. Montréal: Université de Montréal, 2001.
Zanchetta MS Life representations under cancer recurrence: Influences on patients' interest in health information at a hospital setting. Paper presented at the Humbler College 9th Annual Palliative Care Conference, Toronto, ON. [abstract]. J Palliat Med.1998; 2: 128.