Familias de niños con enfermedad falciforme: revisión integrativa

Resumen

Objetivo:  identificar  las  evidencias  científicas  sobre  las  familias  de niños  con  enfermedad  falciforme.  Método:  revisión  integrativa  a  partir  de  la  búsqueda con los descriptores anemia Sickle Cell OR Hemoglobin SC Disease OR Hemoglobin Sickle AND  Family  AND Family  Relations  AND  Child  en  portugués, en  inglés y  español, en  las bases  de  datos  MEDLINE,  LILACS,  CINAHL,  PUBMED,  publicados  entre  enero/2005  y enero/2015. Resultados: fueron seleccionados 16 artículos que originaron las categorías temáticas impacto de la enfermedad falciforme en la familia, repercusiones psicosociales en  la  dinámica  familiar,  calidad  de  vida  del  niño  y  su  familia  y  soporte  social/red  de apoyo.  Discusión:  los  estudios  refieren  que  la  familia  se  mantuvo  como  la  principal proveedora en el cuidado del niño con enfermedad falciforme, enfrentando los desafíos para el alcance de la integralidad del cuidado y luchando por la calidad de vida de  sus hijos.   Conclusión:   esas   evidencias   subsidiarán   el   equipo   multidisciplinario   en   la construcción de un cuidado continuo a las familias de niños enfermos falciformes.
https://doi.org/10.17665/1676-4285.20165289
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