Resumen
Objetivo: identificar las evidencias científicas sobre las familias de niños con enfermedad falciforme. Método: revisión integrativa a partir de la búsqueda con los descriptores anemia Sickle Cell OR Hemoglobin SC Disease OR Hemoglobin Sickle AND Family AND Family Relations AND Child en portugués, en inglés y español, en las bases de datos MEDLINE, LILACS, CINAHL, PUBMED, publicados entre enero/2005 y enero/2015. Resultados: fueron seleccionados 16 artículos que originaron las categorías temáticas impacto de la enfermedad falciforme en la familia, repercusiones psicosociales en la dinámica familiar, calidad de vida del niño y su familia y soporte social/red de apoyo. Discusión: los estudios refieren que la familia se mantuvo como la principal proveedora en el cuidado del niño con enfermedad falciforme, enfrentando los desafíos para el alcance de la integralidad del cuidado y luchando por la calidad de vida de sus hijos. Conclusión: esas evidencias subsidiarán el equipo multidisciplinario en la construcción de un cuidado continuo a las familias de niños enfermos falciformes.Citas
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