Abstract
Aim: To capture maternal representations about the provision of care to newborns with very low birth weight in neonatal hospital units. Method: A qualitative study involving 41 mothers interviewed between November 2011 and July 2012. For analysis, we used the Social Representations framework, following the Collective Subject Discourse (CSD) method. Results: Nine central ideas emerged: fear of the unknown, difficulty in accepting being apart from the baby, difficulty in talking about the baby, real possibility of death, feeling of helplessness with regard to their child’s hospitalization, feeling of guilt for failing to care for the child, the wait for a miracle, feelings of confidence with regard to the team, and the satisfaction that proximity to the newborn brings to the mother. Conclusion: We identified a number of negative aspects such as fear of the unknown separation from the child. On the other hand, the proximity to the newborn was identified as a facilitating aspect. We emphasize the need for intervention aimed at using the mother as a support and the gradual integration of the mother into the care provision process.
References
Couto FF, Praça NS. Premature newborn: maternal support at home for care. Rev. Bras. enferm. [serial on the internet] 2012 Jan/Feb; 65(1): 19-26 [Cited 2014 Jun 30]. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672012000100003&lng=pt&nrm=iso&tlng=en DOI: http://dx.doi.org/10.1590/S0034-71672012000100003
Klock P, Erdmann AL. Caring for newborns in a NICU: dealing with the fragility of living/surviving in the light of complexity. Rev Esc Enferm USP. 2012; 46(1):45-51.[Cited 2012 oct]. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342012000100006&lng=pt&nrm=iso
Merighi MAB, Jesus MCP, Santin KR, Oliviera DM. Caring for newborns in the presence of their parents: the experience of nurses in the neonatal intensive care unit. Rev Latino-Am. Enfermagem. 2011; 19(6): 1398-1404.[Cited 2013 march]. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-11692011000600017&lng=pt&nrm=iso
Zani AV, Golias ARC, Martins STF, Parada CMG, Marcon SS, Tonete VLP. Sentimentos vivenciados pela família de recém-nascido de risco: revisão integrativa da literatura. Rev enferm UFPE on line. 2013 Jan;7(1):269-78.
Zani AV, Merino FGL, Teston EF, Serafim D, Ichisato SMT, Marcon SS. Recém-nascido de risco na percepção da mãe adolescente. Rev Rene. 2011 Abr/Jun; 12(2):279-86.
Melo R et al. The voice of the woman-mother of a premature baby in the neonatal unit: a phenomenological approach. Online Brazilian Journal of Nursing [serial on the Internet].2014 Jun; 13(2) [Cited 2014 Jul 02]. Available from: http://www.objnursing.uff.br/index.php/nursing/article/view/4415
Baum N, Weidberg Z, Osher Y, Kohelet D. No longer pregnant, not yet a mother: giving birth prematurely to a very-low-birth-weight baby. Qual Health Res. 2012 May; 22(5): 595-606.
Schmidt KT, Sassá AH, Veronez M, Higarashi IH, Marcon SS. The first visit to a child in the neonatal intensive care unit: parents perception. Esc Anna Nery [serial on the Internet] 2012 Mar; 16(1): 73-81.[Cited 2014 Jun 28]. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1414-81452012000100010&lng=pt&nrm=iso&tlng=en DOI: http://dx.doi.org/10.1590/S1414-81452012000100010
Tronco CS, Paula CC, Padoin SMM, Langendorf TF. Análise da produção científica acerca da atenção ao recém-nascido de baixo peso em UTI. Rev Gaúcha Enferm. 2010 Set; 31(3):575-83.
Minayo MCS. O desafio do conhecimento. Pesquisa qualitativa em saúde. 12. ed. São Paulo: HUCITEC/ABRASCO; 2010.
Moscovici S. Representações Sociais; investigações em Psicologia Social. Trad. Pedrinho A. Guareschi. 6 ed. Ètrópolis: Vozes; 2009.
Reis SLA, Bellini M. Representações Sociais: teoria, procedimentos metodológicos e educação ambiental. Rev Acta Scientiarum Human and Social Sciences 2011; 33(2): 149-59. [cited 2014 Jul 01]. Disponível em: http://periodicos.uem.br/ojs/index.php/ActaSciHumanSocSci/article/view/10256.
Lefèvre F; Lefèvre AMC. Pesquisa de Representação Social. Um enfoque qualiquantitativo. São Paulo: Liberlivro; 2011.
Favero L, Mazza VA, Lacerda MR. Vivência de enfermeira no cuidado transpessoal às famílias de neonatos egressos da unidade de terapia intensiva. Acta Paul Enferm. 2012;25(4):490-6.
Carmona EV, Coca KP, Vale IN, Abrão ACFV. Mother role conflicts in studies with mothers of hospitalized newborns: an integrative review. Rev. esc. enferm. USP [serial on the Internet]. 2012 Apr ; 46(2): 505-512. [cited 2013 Jan] Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342012000200032&lng=pt. http://dx.doi.org/10.1590/S0080-62342012000200032
Duarte ED, Sena RR, Dittz ES, Tavares TS, Lopes AFC, Silva PM. The role of the family in care delivery to hospitalized newborns: possibilities and challenges towards comprehensive care. Texto Contexto -Enferm. 2012 Oct-Dec; 21(4): 870-8. [cited 2013 Jan] Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072012000400018&lng=pt&nrm=iso&tlng=en
Singer LT, Fulton S, Kirchner HL, Eisengart S, Lewis B, Short E, Min MO, Satayathum S, Kercsmar C, Baley JE. Longitudinal predictors of maternal stress and coping after very low-birth-weight birth. Arch Pediatr Adolesc Med. 2010; 164(6): 518-524.
Santos MCL, Moraes GA, Vasconcelos MGL, Araujo EC. Sentimentos de pais diante do nascimento de um recém-nascido Prematuro. J Nurs UFPE on line [Internet]. 2010 Out/Dez; 1(2):140-49. [cited 2011 Sept 26]. Available from: http://www.ufpe.br/revistaenfermagem/index.php/revista/article/view/374-8796-1-/pdf_17.
Bousso RS, Poles K, Serafim TS, Miranda MG. Religious beliefs, illness and death: family’s perspectives in illness experience. Rev. esc. enferm. 2011 Apr; 45(2): 397-403. [cited 2013 Jan] Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0080-62342011000200014&lng=pt&nrm=iso&tlng=en
Flacking R, Lehtonen L, Thomson G, Axelin A, Ahlqvist S, Moran VH, Ewald U, Dykes F. Closeness and separation in neonatal intensive care. Acta Paediatrica. October 2012; 101(10): 1032-1037