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Maternal perception in terms of newborns with congenital malformations: a descriptive study

Patrick Leonardo Nogueira da Silva, Adriana Barbosa Ayres Soares, Tadeu Nunes Ferreira, Rogério Gonçalves da Rocha


Aim: To identify maternal perception in terms of newborns with a diagnosis of congenital malformation, hospitalized in the intensive care unit. Method: This is a descriptive, cross-sectional study using a qualitative approach, performed in an intensive care unit. The sample was composed of mothers of newborns hospitalized for congenital malformation. We used a semi-structured interview as a data collection instrument. The interviews were recorded, transcribed and analysed by means of content analysis. Results: It was observed that mothers require a more humane caring approach at the time of disclosure, since this is a negative experience in the family environment. Three analytical categories emerged: the moment of disclosure of the diagnosis; maternal language regarding the diagnosis; and the professional approach at diagnosis. Conclusion: Professionals have great difficulty in communicating the diagnosis, and mothers have difficulties in handling the situation.


Children's Healthcare Services; Congenital Abnormalities, Hereditary and Neonatal Diseases; Newborn.


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