Relationship between burden and quality of life of informal caregivers of older adults: a cross-sectional study in outpatient care
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Keywords

Family Caregiver
Quality of Life
Secondary Care
Geriatric Nursing. Cuidador Familiar
Calidad de Vida
Atención Secundária en Salud
Enfermería Geriátrica. Cuidador Familiar
Qualidade de Vida
Atenção Secundária à Saúde
Enfermagem Geriátrica.

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Abstract

Objective: To analyze the relationship between burden and quality of life of informal caregivers of older adults cared for in a medium complexity outpatient clinic. Method: A descriptive, cross-sectional and correlational study conducted with 20 caregivers of older adults cared for in a medium complexity Health Unit in the city of São Carlos-SP. The following instruments were applied: questionnaire for socio-demographic characterization, Zarit Burden Inventory, and Ferrans and Powers Quality of Life Scale. The interviews were conducted at the Health Unit, during the care procedures with the older adults. All ethical issues have been respected. In the data analysis, the T-test, ANOVA, Pearson and Spearman Correlation Coefficient were used, with a significance level of 5%. Results: There was a negative correlation between burden and quality of life (ρ=0.63; p=0.003). Conclusion: Caregivers with high burden scores may present worse quality of life scores.

https://doi.org/10.17665/1676-4285.20206275
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References

Araujo ES, Gerzson LR, Oliveira LO. Qualidade de vida e sobrecarga: perfil dos cuidadores de idosos com doença de Alzheimer. Cinergis [Internet]. 2016 [cited 2019 Jun 20];17(1):27-31. Available from: https://doi.org/10.17058/cinergis.v17i1.7318

Giacomin KC, Duarte YAO, Camarano AA, Nunes DP, Fernandes D. Cuidado e limitações funcionais em atividades cotidianas – ELSI-Brasil. Rev Saúde Pública [Internet]. 2018 [cited 2019 Mai 24];52(supl 2):9s. Available from: http://dx.doi.org/10.11606/s1518-8787.2018052000650

Nunes DP, Brito TRP, Duarte YAO, Lebrão ML. Cuidadores de idosos e tensão excessiva associada ao cuidado: evidências do Estudo SABE. Rev Bras Epidemiol [Internet]. 2018 [cited 2019 Jun 05];21(supl.2):e180020. Available from: https://dx.doi.org/10.1590/1980-549720180020.supl.2

Silva MC, Lima CFM, Lindolpho MC, Cruz TJP, Caldas CP. Caring for the carer: a qualitative study based on participatory methodology. Online Brazilian Journal of Nursing. [Internet]. 2019 [cited 2020 Abr 25];17(2). Available from: http://dx.doi.org10.17665/1676-4285.20185987

Musich S, Wang SS, Kraemer S, Hawkins K, Wicker E. Caregivers for older adults: Prevalence, characteristics, and health care utilization and expenditures. Geriatric Nursing. [Internet]. 2017 [cited 2020 Abr 25];38(1):9-16.Available from: https://doi.org/10.1016/j.gerinurse.2016.06.017

Jesus ITM, Santos-Orlandi AA, Zazzetta MS. Sobrecarga, perfil e cuidado: cuidadores de idosos em vulnerabilidade social. Rev Bras Geriatr Gerontol [Internet]. 2018 [cited 2019 Jun 19];21(2):194-204. Available from: http://dx.doi.org/10.1590/1981-22562018021.170155

Anjos KF, Boery RNSO, Santos VC, Boery EN, Silva JK, Rosa DOS. Fatores associados à qualidade de vida de cuidadores familiares de idosos. Rev Ciência y Enfermería [Internet]. 2018 [cited 2019 Jun 19];24:17. Available from: http://dx.doi.org/10.1590/0104-07072014002230013

Tsai YH, Lou MF, Feng TH, Chu TL, Chen YJ, Liu HE. Mediating effects of burden on quality of life for caregivers of first-time stroke patients discharged from the hospital within one year. BMC Neurology [Internet]. 2018 [cited 2019 Jun 04];18(50):1-9. Available from: http://dx.doi.org0.1186/s12883-018-1057-9

Costa FM, Nakata PT, Brocker AR, Paskulin LM, Morais EP. Qualidade de vida de cuidadores de idosos vinculados a um programa de atenção domiciliar. Rev Enferm UFPE on line. [Internet]. 2017 [cited 2020 Abr 24]10:(7):2582-2588. Available from: http://dx.doi.org/10.5205/reuol.9106-80230-1-SM1007201635

Scazufca M. Brazilian version of the burden interview scale for the assessment of burden of care in carers of people with mental illnesses. Rev Bras Psiquiatr [Internet]. 2002 [cited 2019 Jun 14];24(1):12-7.Available from: http://dx.doi.org/10.1590/S1516-44462002000100006

Yamada BFA, Santos VLCG. Construção e validação do índice de qualidade de vida de Ferrans & Powers - Versão Feridas. Rev Esc Enferm USP [Internet]. 2009 [cited 2019 Jun 14];43(spe):1105-13. Available from: http://dx.doi.org/10.1590/S0080-62342009000500015

Alshammari SA, Alzahrani AA, Alabduljabbar KA, Aldaghri AA, Alhusainy YA, Khan MA, et al. The burden perceived by informal caregivers of elderly in Saudi Arabia. J Family Community Med [Internet]. 2017 [cited 2019 Jun 19];24(3):145-50. Available from: http://dx.doi.org/10.4103/jfcm.JFCM_117_16

Zhang M, Chang Y, Liu Y, Gao L, Porock D. Burden and strian among familial caregivers of patients with dementia in China. Issues Ment Health Nurs [Internet]. 2018 [cited 2019 Jun 20];39(5):427-32. Available from: http://dx.doi.org10.1080/01612840.2017.1418034

Lethin C, Renom-Guiteras A, Zwakhalen S, Soto-Martin M, Saks K, Zabalegui A, et al. Psychological well-being over time among informal caregivers caring for persons with dementia living at home. Aging Ment Health [Internet]. 2017 [cited 2019 Jun 20];21(11):1138-46. Available from: http://dx.doi.org10.1080/13607863.2016.1211621

Flesch LD, Batistoni SST, Neri AL, Cachioni M. Aspectos psicológicos da qualidade de vida de cuidadores de idosos: uma revisão integrativa. Geriatr Gerontol Aging [Internet]. 2017 [cited 2019 Jun 20];11(3):138-49. Available from: http://dx.doi.org10.5327/Z2447-211520171700041

Cesário VAC, Leal MCC, Marques APO, Claudino KA. Estresse e qualidade de vida do cuidador familiar de idoso portador da doença de Alzheimer. Saúde Debate [Internet]. 2017 [cited 2019 Jun 18];41(112):171-82. Available from: http://dx.doi.org/10.1590/0103-1104201711214

Naef R, Hediger H, Imhof L, Mahrer-Imhof R. Variances in family carers’ quality of life based on selected relationship and caregiving indicators: A quantitative secondary analysis. Int J Older People Nurs [Internet]. 2017 [cited 2019 Jun 12];12(2). Available from: http://dx.doi.org/10.1111/opn.12138

Manzini CSS, Brigola AG, Pavarini SCI, Vale FAC. Fatores associados à resiliência de cuidador familiar de pessoa com demência: revisão sistemática. Rev Bras Geriatr Gerontol [Internet]. 2016 [cited 2019 Jun 02];19(4):703-14. Available from: http://dx.doi.org/10.1590/1809-98232016019.15011

Ivziku D, Clari M, Piredda M, Marinis MG, Matarese M. Anxiety, depression and quality of life in chronic obstructive pulmonar disease patients and caregivers: an actor-partner interdependence model analysis. Qual Life Res [Internet]. 2019 [cited 2019 Jun 14];28(2):461-72. Available from: http://dx.doi.org10.1007/s11136-018-2024-z

Schüz B, Czerniawski A, Davie N, Miller L, Quinn MG, King C, et al. Leisure time activities and mental health in informal dementia caregivers. Appl Psychol Health Well Being [Internet]. 2015 [cited 2019 Jun 19];7(2):230-48. Available from: http://dx.doi.org10.1111/aphw.12046

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